Hello dear
friends and readers!
It has been
a while since my last post, but I’m going to try and do better. I’ve been a busy boy!
First, let
me inform all of you of a couple of things I’ve come across. First, let me say that I have a friend who
came into my life by phone who is a cured Cushie and sadly discovered, to his
dismay, that problems don’t just disappear when an ATCH tumor is removed. Although we Cushies do lose all or most of
that weight gain we had as Cushies, other damage still remains and if things
are strained to the breaking point with friends and family sometimes those
relationships just aren’t recoverable.
It was because of those things that I was brought into his life.
Well, we
made a project out of researching those issues, and he made a project out of
researching Cushing’s to, perhaps, gain more insight in my condition, where
there is no visible tumor obviously causing my problems. One of the things we did find out is that it
is possible, though there doesn’t seem to be a proven case yet, for a problem
with the HPA axis feedback systems, most likely a problem with the sensors,
could be behind some cases like mine. I
will mention, though, that my diagnosis is no Cushing’s Disease and my
endocrinologist thinks I have a micro tumor which is slipping between the
cracks of my MRI scans, a more common happening than most folks realize.
Well, in the
course of our research of the medical literature we stumbled onto one article
where the doctor implied Cushing’s may be much more common than officially thought. So I contacted the doctor, who lives in
France to find out if that was his position and he sent me back what appears to
be an article he has, or is going to submit for publication. The contents astounded me! It is a review of research which has been
done in Europe on the incidence of Cushing’s in the Diabetic population, the
papers he reviewed had an incident rate when averaged together of about 1.5%,
which is well above the official rate on an order of magnitudes. Now that we knew where to look, we dug up two
more papers, one out of the UK and another out of Turkey, which had even higher
rates. In the case of the UK, they found
a rate of 10% of Diabetics tested had Cushing’s. The Turkish research test obese men and found
a similar rate of 10%. And all of those
used the Dexamethasone suppression test as their standard for diagnosis, which
misses a significant number of cases with Cushing’s! One of the Western European papers and the
Turkish paper recommended screening for Cushing’s for all of the populations
studied as a matter for course.
In the
course of our hunt for all things Cushing’s we stumbled across a study on the efficacy
of treating Cushing’s with Cabergoline, a D9 agonist. The study was quite favorable towards its use
because it seems to be quite effective with a certain subset of Cushing’s
sufferers. That had particular
significance for me since I am on a D9 agonist and my cortisols have all tested
in the upper normal range with the exception of one occasion, since I’ve been
on that medication. The one occasion was
when I collapsed in an intermediate care center and they called an ambulance,
on that occasion I was diagnosed with adrenal failure, given Cortisef and sent
home after I came out of it and they were sure I was stable. That opens up some possibilities right there.
Also on a
personal note, in early spring I had a realization hit me like a falling brick wall. My back is still degenerating and it is
become more difficult to walk. I can
only stand up for short periods of time and walk a short distance before the
pain becomes overwhelming, and that even with pain medication! Without it I can barely make it to the
kitchen at the front of my home and back to get a cup of coffee, and sometimes
I don’t even make it that far. If I want
to cook, say an egg, then I better take the pain medication before I try that,
and anything which requires more time?
Well, I put a stool in the kitchen for that. The realization was that I was giving in and
letting it take its course without a fight.
So I decided to fight!
Earlier,
last winter in fact, there’d been a discussion between some of us on a Cushing’s
forum where a number of us complained that on disability we simply can’t afford
quality food, that is, fresh fruits and vegetables, on what we are given to
live on. Because of that we are pretty
much forced to live on pasta dishes and the like, which makes our weight gain
even easier. Well, somebody very knowledgeable
on nutrition suggest that we garden.
When I realized what I was doing by giving in to my back problems and
recalled that online conversation I decided it was time to go after two birds
with one stone. So with the help of my
family I started a small garden this year.
We’ve left
an old broken office chair outside to serve as a stool for me to use and, after
some experimentation I found that container gardening is the best way for me to
go. So, we’ve only bought several packs
of tomatoes since my vines of beefsteak tomatoes started bearing their
fruit. True, they aren’t that
productive, but this is my first year at it and here at the late season they
are popping out since I got my fertilization scheme right. But they have pretty stably provided me
enough tomatoes for my sandwiches to cut down on the food bill some.
I’m looking
to the long run, which means I’m using heirloom varieties instead of the easier
to grow and cheaper hybrids. I can save
the seed from the best plants among my heirlooms and have reliable seed to
plant next year, or later, if I choose to grow more varieties an my small space
in the yard of the duplex I live in can really handle. That means my seed cost will go down in the
long-run as I build up a nice variety of stock I and my family can use and rely
on. It also means, since I am using
containers, that my initial high cost for soil will go down in a few years and
all I’ll have to do is replace some of the nutritional factors as I go along and
reuse my potting soil. By the way,
although we didn’t do it this year, my plan is to use organic growing methods
from now on. I have already planned out
next year’s garden and gotten most of the seeds I plan to use.
I’ve also started
a New Channel on YouTube, Disabled Gardening.
I haven’t uploaded my first video yet, though I have shot most of the
video footage for it, I just haven’t put it together and narrated it yet. I intend to use it to both chronicle my
gardening and to offer tips on how those of us who are disabled or otherwise disadvantaged,
can grow gardens and feed ourselves, right now in an urban environment where it
is wise to also make our gardens appealing in appearance as well.
So there you
are. That is what I’ve been up to. I hope you’ve enjoyed my story.
